I have wondered if I should hit the publish button on this post all week. I know others experience things that are much more difficult beyond this. We are thankful that we now have an explanation for the things our child has been going through and for the good treatment our son is able to receive. It was still difficult news to hear. I have also wondered if this post would be to personal to share on the Lydia & Lilac site, but we acknowledge that Lydia & Lilac is also an opportunity for us to share what the Lord is doing in our lives. So without further ado, here is our post originally written October 3rd.
“Your son has Hashimoto’s”, these are the words that were spoken to Jerry and I this week. Although we had a pretty good hunch that the diagnosis was coming, preparing yourself for the news that your child has a disease that you, as the parent, cannot take away is never something you hope for. If you are like most people I talk to, you may be wondering what in the world Hashimoto’s is. Simply put, Hashimoto’s is an autoimmune disease that attacks your thyroid. In a child this manifests itself in a myriad of symptoms that include sensitivity to cold, dry hair, skin, or nails, constipation, difficulty with memory, weight gain, and lack of energy. Hashimoto’s can also cause a stunt in growth, intellectual disabilities, and learning disabilities; which we fortunately, did not experience.
Our little boy has always been a happy and healthy kid. In first grade he was diagnosed with ADHD. He has a hard time sitting still, loves to chatter all day, and enjoys playing outside with his brothers. He loves to run errands with mom and he is brilliant. Academically, things come naturally to him and there are times I wonder if he has a photographic memory. He has a smile that can light up a room and he is silly beyond belief.
About 3 months ago, we went to a routine appointment for ADHD. Our little man had gained quite a bit of weight. While talking to his doctor, we began to realize there had been quite a few changes. He didn’t want to play outside very often, was always tired, didn’t ride his bike anymore unless his brothers absolutely begged him to, he rather stay home than go on an outing with mom, and when friends came over to play, he would play in short bursts spending most of his time on the couch. He was having stomach problems and was cold all of the time. We were on our way out the door of the office, when his doctor caught up with me and said she had been looking at the numbers and thought it might be a good idea to get his thyroid checked.
So off we went for blood work and we made a follow up appointment with his primary peditrician. At this visit, his pediatrician said that he thought it was probably nothing, that no one had ever come through his office for weight gain and ended up having Hashimotos. Then, he looked at the numbers. Next he started to talk to us about Hashimoto’s and hypothyroidism and sent us for more blood work.
Fast forward three months and here we are, a new diagnosis, one that I know very little about and am still trying to wrap my head around, I am sure in time I will come to have a better understanding of things like THS, T4, etc. In the mean time we find ourselves here in this place of uncharted waters. I think it finally hit me yesterday when picking up his medication. I had a small melt down. I realized that this is for life, I can’t take it away. I’m thankful that it is something that we can manage with medication, but as a parent you never want your child to have any type of disease, disorder, or disability.
We know that our little guy is in the hands of God and we trust that He will take care of him. I have been reminded again that my children are His and that He has given them to us to care for and point to Him. Our job is to teach our son that God loves him and to take care of him. We have been blessed with the support or family and friends. They have been sending us information and articles and we are so thankful for any and all support as this is still very new to us. We will face the days ahead together with compassion and a better understanding of what our son is going through. We will face each day with prayer and will continue to let him know that he is loved beyond belief.